What is Self-Contained? How would you handle it?

     I often wonder how many parents actually give that a thought.  How many whose child(ren) have special educational or healthcare needs actually know what a "self-contained" classroom is all about.  Oftentimes, these classes are called "special classes", the "special ed[ucation] class".  At the same time they are looked upon negatively. 

     In my research and coursework, I recently read something that made me think about Kerstin's school.  "Many of the students who were in special education were often isolated in the least desirable locations within the schools" (Losen and Orfield, 2002).  Previous posts and letters submitted to the local paper can attest to this being a sad reality in my daughter's school. 

     Special education classrooms or the self-contained classrooms are defined as: 

 Self contained classrooms are classrooms specifically designated for children with disabilities. Self contained programs are usually indicated for children with more serious disabilities who may not be able to participate in general education programs at all. These disabilities include autism, emotional disturbances, severe intellectual disabilities, multiple handicaps and children with serious or fragile medical conditions.


These classrooms are NOT designated to be an afterthought, a catch all storage area, a place to put students because they have behavioral issues.  There are areas for all of those.  They are called an actual part of the school environment, a storage closet and the behavioral management classroom.  If that type of class is not available, maybe one should be invested in.  


     While wondering what other parents knew and thought of the self-contained classrooms, I also wondered what would happen if others, particularly the decision-makers had to spend a day in these classroom that are placed in the "less desirable parts of the schools?  Can you imagine that?  I cannot count the times I've pictured the special education coordinator especially and maybe even other school board and leaders, having to use a wheelchair and not being able to get out of the chair unless it was the for purpose of using the restroom.  How would you handle it?

     How would you handle an entire school day in a wheelchair with no other seating option in the "self-contained" classroom?  Bean bag flattened and no longer supportive for a child with little to no trunk control.  How would you handle being segregated from your peers and not interacting with others that do not have a disability or special educational need?  

     I don't think that would be a comfortable feeling!  I'll say it again, my daughter does NOT live a self-contained life and she will not attend school and on a daily basis be expected to do so there.  

     Please do not misunderstand me on this.  The classrooms are needed!  They need to be an environment that is conducive to learning and tailored to assist with the needs of the students that they are there for.  Not an afterthought!


More to come...

Access for everyone!

     While working on a class assignment, I came across somewhat of a challenge for everyone.  I will include it later in the post.  This challenge made me think about what I have experienced in the past week.  After Kerstin's therapy appointment last week, I had to go to the Sears Repair store to pick up some things for the lawn mower.  This was my first time going to this location.  I must say it was an eye opening experience.

     The experience was so touching, I had to tweet Sears about it and I've sent an email to Americans with Disabilities Act (ADA) about this and the need for better changing tables/stations in public family restrooms.  We, my daughter, my 10 year old and 4 year old nieces pull into the parking lot.  There are faint lines for accessible parking, Great.  No one was unnecessarily parked there, even better!  The store has steps/stairs to the entrance door and NO ramped access!  NOT GOOD at all!  I had to leave my daughter and nieces in the vehicle, running so that they could have air.  I had to ask the 10 year to lock all the doors until I returned.

Access for everyone!

     A few days later, I mentioned the experience to my sister.  She said something so critical yet, something I know many people do each and everyday.  When you have the ability and use of all limbs and can climb stairs without incident you don't think of those among us who cannot do the same.  

     So, I will challenge you to try this.  I think it's worth it. I even posted it to Facebook/Growing With Kerstin. 

Worth the experiment! Please take notes and share if you don't mind.

Many of us take for granted our ability to come and go as we please. With the exception of a few buildings, which are off-limits to the general public, we are free to enter any building we wish, whenever
we wish. During the next week, keep track of the buildings you enter, the streets you cross, and the activities in which you participate.

* How accessible are these to persons who are in wheelchairs, blind, or hearing impaired?
* Are the room numbers in your building labeled in Braille?
* Are the steps ramped or is there an accessible lift or an elevator?
* What areas have not been made accessible to these individuals?
* How does accessibility limit their participation in the activities in which you regularly participate?
* How could these areas be made more accessible to individuals with disabilities?

Change the Changing Stations!

     You cannot count the times you've been out with your family whether, it was shopping, dining, appointments, entertainment or whatever, you've needed the restroom!  If you haven't that's a new one!  If you haven't it is a guarantee that your little one or the little ones you're traveling with have needed the restroom.  It is a part of life.  Whether it be a newborn or an elderly person...the restroom break is inevitable.  

     For many of us, we are raising children with special needs.  Those needs include having to be changed!  This is NO easy feat when the person needing to be changed is well over the height and weight limit of the very popular "Koala Kare" changing stations that are readily available in almost every restroom I've been in.  You've seen them.

AMC Theaters-Montgomery, AL

Therapy

     There in-lies the problem, the big issue!  Babies and infants are NOT the only people in our society that needs the changing stations or access to a public restroom.  We have preteens, teens and even adults that cannot go into the restrooms and use the toilets or the urinals, my preteen included!  

     I wish you could see the acrobatics I perform when I am in the restroom changing a 75 lbs/ 4 feet whatever inch on a changing station that is only designed for a baby.  I'm usually standing on one leg because my knee is under the station for extra support!  I'm leaning to her chair for her toiletries at the same time keeping a hand on her so that she doesn't come off the side!!! Some of they are higher than others making the process even more challenging!

     I know that something better can be done!!  We have so many family restrooms now.  They too, are available almost everywhere I've gone lately.  I know an adult size station can at least be placed in those restrooms!  Our families deserve that and the privacy!

  

Changing area at Children's Rehabilitation-Montgomery, AL

CRS-Montgomery, AL

     I know a simple table or cushioned bench is not hard to place in restroom and place a simple accessible sign above it is not expensive!  Next stop, Americans With Disabilities Act (ADA).

More to come...

No Parking!!!

     How many times have you gone to Walmart, the mall, the movies or even your child's school and someone was parked in accessible parking and you felt they shouldn't park there?  It has been too many times to count for us!  Feelings and counts aside...they have no tag or placard acknowledging the need to use accessible parking.  Let's keep in mind, not all disabilities are visible!  The person may have asthma or COPD, Epilepsy or some other type of medical need that causes them to need to park close to where they are going. 

     We also need to "keep it real" and be honest!  People are abusing the tags, the placards and overly abusing accessible parking.  It is NOT convenience parking!  That parking is there, close to the buildings and spacious enough for individuals and families that really need them.  We have people and wheelchairs to unload and it CANNOT be done so easy in the usual aisle parking. 

     I know that every single time I have gone to Walmart, I am guaranteed to see people pulling up withe placards swinging from the rear-view mirror, when they clearly state to remove before driving. 











 The part that really bugs me is when there is a vehicle parked on the striped lines in accessible! 

That is very inconsiderate when, like I stated earlier, families are unloading people and wheelchairs.  People are parking in ramp vans which need the extra space, 8 feet is printed on most vehicles with ramps! 

     Vistaprint just might be getting business!  Whenever I see a vehicle parked on the lines, they will come out and see something similar to one of the pictures and a little message saying "Think before you park!"

Be mindful, the spaces are not a luxury!  They are a necessity!