Wow, it's really been a month?!?! Sorry, it's been so long! I have bee working and praying, seeking ways to get my daughter's weight back up. I am convinced now that it has to be the medicine she is on for seizures.
She had yet another weight check today and is down a few more ounces from September 9 =( This is heartbreaking, especially when the nutritionist keeps bringing up "feeding tube"..surprisingly I had the strength to tell her out right today, " No feeding tube"!!!
I'm on a mission now, (1) to get my daughter on another seizure, one that will not cause weight loss and loss of appetite (2) find all sorts of pureed meals and recipes that are high in calories and (3) GET MY DAUGHTER'S WEIGHT BACK UP!!!
More to come...