As you all are well aware, Kerstin had her g-tube place back in March. While she was in the hospital post surgery, I sent a text of her stomach before and after to our family ( it's also the one I included in a previous post ). So, I have a very curious niece, that's 3 going on 33! Her mom had told me a few times that my niece would get her cell to look at Kerstin's picture every night and say that the doctor's had put "that" in Kerstin's stomach so that she could get her food. Clearly, her mom really explained things to her, in an age appropriate way. It became clear to me the other day that she either didn't believe her mom, or she needed further explanation, or that she finally got to see Kerstin's stomach in person, and thought she would get the full story from me, the mom.
Normally, when I give Kerstin her boluses, I do it discretely, since this is a personal and intimate process with me either having to lift her dress or her shirt to get to the 'button'. Relaxing at home during summer break, enjoying a day at home with her cousins...Kerstin managed to pull her shirt up, exposing the port.
My niece being, curious little person, saw this and came to me and said, "it's something on Kerstin's stomach!" I explained to her that it was Kerstin's "other belly button" and that is how she eats now. She wanted to know why because Kerstin has teeth too, like her. Again, I explained, that she does, but she could no longer eat by mouth and that her food went directly to her stomach. She smiled and sang my little feeding song that I sing to Kerstin at the start of her boluses: "It's going down, down, down, into your tummy, tummy, tummy!"
Yes! Children are curious, they want to know what's going on in the world around them. We have to be ready and willing to explain to them the things they are asking, age appropriate, of course. I believe that if we gently explain to our little ones that we all coexist here and that we all have different abilities, things would be better for all. Who knows? Maybe then we won't have so many children staring at children and adults because they may be in a wheelchair, walk with a limp, wear glasses, talk a little differently, or have to eat from a feeding tube!
More to come...