Happy Thanksgiving!

Let's give THANKS, not just because the calendar says so...give thanks every day!!!

Wordless Wednesday =)

Another day...another weight check...

Wow, it's really been a month?!?! Sorry, it's been so long!  I have bee working and praying, seeking ways to get my daughter's weight back up.  I am convinced now that it has to be the medicine she is on for seizures.

She had yet another weight check today and is down a few more ounces from September 9 =(   This is heartbreaking, especially when the nutritionist keeps bringing up "feeding tube"..surprisingly I had the strength to tell her out right today, " No feeding tube"!!!

I'm on a mission now, (1) to get my daughter on another seizure, one that will not cause weight loss and loss of appetite (2) find all sorts of pureed meals and recipes that are high in calories  and (3) GET MY DAUGHTER'S WEIGHT BACK UP!!!

More to come...

The week did not end on a good note...

So, we've decided to keep therapy days on Friday's, that will give the princess a chance to rest and regroup.  Not going back to school the next morning sleepy and groggy from the exhaustion of school and therapy the day before.

This past Friday, she also had a weight check before therapy...get there and she has LOST about 10 ounces :(  So not what I wanted to or needed to hear!!  I was distraught and thinking what can I do ( suggestion are greatly appreciated ) to get my daughter to gain weight and maintain it!  I was told by one of therapists that added coconut oil to her foods ( pediasure ) would help to add extra calories.  I've got to get a food processor and make her purees myself!  I just feel so helpless and not sure where to start and what to do...giving up is NOT an option though!!

We're going to make it happen and get through this too.

More to come...

Another school year underway!!!

YES, it's that time of they year...school has started and my sweet pea is getting on up there in age!! Stull unbelievable to me that she will be in double digits in December...*tear*!  I have a beautiful little lady in the making!

Her first week has already been busy...school and therapy! Here's a first day of class photo!!!

And a therapy photo...petting "Brodie" after they worked so hard.

( Brodie is an Easter Seals therapy dog ). You can also join a great cause and help raise money for this type of service and so many others to help benefit children and adults with disabilities.  Join a walk/team or just make a donation: Princess Kerstin's Team.


More to come...

Pulling mommy's leg!!!

Tomorrow should be another interesting day of therapy!  Last week my little princess had therapy, but my sister went along with us to do some back to school shopping!  What would you know...the princess got to therapy and decided she was NOT having it and 'pretended' to be so sleepy and totally not in the mood for her session! Therapist came back out with her and told me that she seemed so groggy and not up to therapy that particular day...she was looking the part!!!

About an hour later, after lunch, we arrived at Target...ALL SMILES!!!  She was literally in her "happy place"!!  We were in there longer than usual because of back to school shopping for her and not once did she have to be re-positioned in her chair or anything...cool, calm, and collected!  :-)

Gotta love MY PRINCESS!!!

More to come...

Tears!!!

Wednesday, July 27, 2011, was a stressful morning for me...it took everything in me to hold it together until I was able to get to another rooom away from my daughter.  Her heel on her left foot still has this little spot from the rubbing against her night time splints.  Back in June and her right ankle was extremely red without having the splints on the night before.  It was so red and actullay peeling...BROKE MY HEART to see this...I couldn't get away from my princess fast enough to get to another to cry!!!  I eventually got it together to give her a nice warm foot rub and massage with Shea butter.

I know with the redness that isn't fully clearing, it is almost a give that she will be undergoing that surgery this fall/winter.  We are not giving up on anything, we are still moving forward...taking each day one step at a time.


More to come...