Growing with Kerstin: Raising a child with "special needs": A Disability does NOT equal clueless!

Tuesday, April 22, 2014

A Disability does NOT equal clueless!

On Monday, April 21, Kerstin had a follow up appointment with her neurologist. His office is at Children's Hospital. I am the kind of mom that always talk to and explain to her what her appointments are all about and where we're going for the appointment.

So, needless to say, Kerstin knew all weekend that she was going to Children's Hospital! Monday morning comes and she had much attitude! No good morning smile, she barely looked at me. The whole time, I'm talking to her, telling her that we have to get ready to hit the road for her appointment. She just looked at me!!! PLEASE do NOT think that just because a person has a disability they do not have feelings or understand what is going on around them!!!

I had to slow down and talk to my little lady about her visit to Children's... I promised her that it was only an appointment and that she WOULD be coming back home. Her mood lightened almost immediately!

So, a few hours later when we arrived at the hospital parking garage...she became startled. I guess the fact that we were actually there, again. This was our first return since we left Thanksgiving Day 2013. Kerstin knew exactly where she was, and her mood changed once again.

APPOINTMENT:

Kerstin has been having seizures, more than her usual. These "breakthrough seizures" were happening without fevers or sickness. They are called so because they can happen at anytime, for any reason even when on an anti-epileptic drug. Missy is getting bigger, she's in a growth sprut and the lower dose had become ineffective for her. We have an increase in seizure.

Also, Kerstin's mommy, is about to be in contact with some people about a "Seizure study". (More info later)

Leaving the hospital...Kerstin was a very happy little girl!!! She got to go to Target and come back HOME!!!