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" be happy no matter the adversity"

"Be happy no matter the adversity!" So glad we're a family that prays together and can truly find happiness no matter the adversity!

More to come...

Struggles and strife seem to hang around for a while...

Last Tuesday night...wee hours of Wednesday morning, we received word that my grandma ( mom's mom ) had passed away at the age of 96. Shocking and saddening. We didn't want to tell our mom until all of her children could be there with her to break the news to her, following her own lengthy illness! She was hurt and shocked!! :( We are a praying family and will remain one!!

Grandma lived in MI and her body is being flown to AL for burial...we are anticipating my mom's sisters and brothers and nieces and nephews from different parts of the country this week and next.

More to come...

Late New Year start

Happy New Year!!

There has been tons of things going on since the last post! TONS! First, my sweet pea is on a steady incline of weight gain, with only one setback in October when she was really sick with a cold and lost a few ounces, not much. But, since then she has been constantly gaining, we're only a few ounces shy of the nutritionist 40 lb goal. Yes, that is still small for a now 9 year old, but its up from where she was and this gain keeps her from having a feeding tube...we'll take it!! She's gonna continue to gain and mommy will lose!

Back in December, the love of my life turned 9!! I'm still in shock at how much she has grown, the progress we have made, the goals she's met as far as PT goes. Thank God for BLESSINGS and miracles. She is still having weekly PT/OT/Speech sessions at the hospital! We are on another path of praying its not what they're thinking...dealing with scoliosis when she's sitting...over the ball ( therapy ball ) her back is straight but her PT noticed some subtle "curving". This too shall pass and its nothing God can't handle!

Also, in December, the Sunday after my daughter's birthday, my mom was admitted to the hospital with severe back and leg pains, she couldn't even walk. She was in for three days and had to have a biopsy done because and MRI showed some spots on her back bone. My mom also suffers from Kidney disease/Renal failure, and these spots could be a cancer caused by the kidney problems know as Myeloma. After that biopsy was done we had to wait another week for the results... talk about fasting and praying! Her appointment...Dr. said the test showed no cancer but he wanted to make sure it was ruled out and was going to schedule her for a mammogram, pelvic exam and another biopsy! Appointments were scheduled...but mom got worse with pains and swelling. She was hospitalized again, this time for a week! She had the other biopsy done and we were told that the results comes back in three phases first phase negative of cancer. She had her follow up last week and still making strides and doing somewhat better. She does have to start dialysis, but will be able to do the in home treatments. This process will start within the next few weeks! We are praying to God for divine intervention, strength and knowledge to endure this too!

In spite of all of this we are looking forward to and expecting a GREAT year! With God as our guide we can't go wrong!

More to come...

Changes...

So, last Thursday, my sweet pea had a 'feeding clinic' appointment again. I initially thought she was going in just to be fitted for a Tumble Form feeding chair...the appointment was just that, another feeding clinic. She was weighed, length taken and the talk of nutrition and feedings and watching her eat some of the things she likes to eat. But, it turned into one of the most devastating appointments I've have with my daughter in years!!

We had gone alone, just the two of us, and to hear the nutritionist and speech pathologist say that she is underweight, which was not a surprise to me, she's short for her age, no surprise here either...she hasn't gained or grown in four months...surprising! Hearing, "we may have to look into a feeding tube to help meet her nutritional needs, she can still be fed by mouth but her Pediasure will be tube fed"...devastating!!

I cried, and could barely compose myself for the rest of the appointment...I managed to find out other options. She will be placed on a higher calorie nutrition drink four times a day and will have to have monthly weigh ins.

I am praying to God for the strength to make it each day...for the knowledge and ability to do the best that I can for my daughter. I've been reading and researching other drinks, different purees and mechanical soft foods...she will be fed more throughout the day, she will gain weight, no feeding tube needed!!

more to come...

nOT FEELING IT KIND OF WEEKEND...

Sweet peas has been sneezing all weekend long. Along with the sneezes came a runny nose....we've been inside all weekend, Vick's rub, humidifier, Benadryl, Tylenol....whatever it takes to get her back to herself.

I've been dealing with some things personally and spiritually! I'm a work in progress spiritually! I'm growing and changing...being prayerful ( DAILY )!! I've being trying my hardest to stay on task with devotional readings everyday and I'm constantly saying little prayers throughout the day! i'm so very thankful to God for the many blessing endowed upon us! The fact that I am able to be at school with my daughter everyday as her paraprofessional/ aide, the fact that I have not worked in 5 years and we are still being blessed!! That's something to praise Him for!

I thought of that famous saying " when a person shows you who they really are, believe them." I'm seeing that in my life and I'm believing what people are showing me! Its funny how I've always heard people say that when you start to grow and the Lord is preparing you for bountiful blessing, that's the time when you'll see the so-called friends dissipate. They never were friends...they're showing you that in the midst of your growth!

Thank God for lessons in all forms!

more to come...

Another week done!

Week two of school is in the record books!! Sweet pea had a fairly decent week! We came home early on Wednesday because she had had two long days, Monday and Tuesday. She was tired and took a nap when we got home! Not like her at all.

I'v been facing yet another conflict with things at school for her. I can not seem like for the life of me get an understanding from her speech teacher on what day(s) she will be working with her. I'v told her more than once that for the past few months she's been having therapy at the hospital on Monday afternoons. She first told me that she would work with her on Monday/Wednesday mornings at 10 a.m., then it was Tuesday/Thursday at 10 a.m., then Thursday she decides she wants to see her at the time the resource teacher has her scheduled and that was so distracting and very confusing. She tells me today at the end of the school day that she's 'probably' gonna work with her on Monday and Wednesday at 1 p.m., but wasn't sure. I was like okay, I'm not asking anymore and her therapy appointments have been scheduled for September, on Monday afternoons.

I am so tired of the 'educated educators' being so asinine!!

More to come...