Changes...

So, last Thursday, my sweet pea had a 'feeding clinic' appointment again. I initially thought she was going in just to be fitted for a Tumble Form feeding chair...the appointment was just that, another feeding clinic. She was weighed, length taken and the talk of nutrition and feedings and watching her eat some of the things she likes to eat. But, it turned into one of the most devastating appointments I've have with my daughter in years!!

We had gone alone, just the two of us, and to hear the nutritionist and speech pathologist say that she is underweight, which was not a surprise to me, she's short for her age, no surprise here either...she hasn't gained or grown in four months...surprising! Hearing, "we may have to look into a feeding tube to help meet her nutritional needs, she can still be fed by mouth but her Pediasure will be tube fed"...devastating!!

I cried, and could barely compose myself for the rest of the appointment...I managed to find out other options. She will be placed on a higher calorie nutrition drink four times a day and will have to have monthly weigh ins.

I am praying to God for the strength to make it each day...for the knowledge and ability to do the best that I can for my daughter. I've been reading and researching other drinks, different purees and mechanical soft foods...she will be fed more throughout the day, she will gain weight, no feeding tube needed!!

more to come...

nOT FEELING IT KIND OF WEEKEND...

Sweet peas has been sneezing all weekend long. Along with the sneezes came a runny nose....we've been inside all weekend, Vick's rub, humidifier, Benadryl, Tylenol....whatever it takes to get her back to herself.

I've been dealing with some things personally and spiritually! I'm a work in progress spiritually! I'm growing and changing...being prayerful ( DAILY )!! I've being trying my hardest to stay on task with devotional readings everyday and I'm constantly saying little prayers throughout the day! i'm so very thankful to God for the many blessing endowed upon us! The fact that I am able to be at school with my daughter everyday as her paraprofessional/ aide, the fact that I have not worked in 5 years and we are still being blessed!! That's something to praise Him for!

I thought of that famous saying " when a person shows you who they really are, believe them." I'm seeing that in my life and I'm believing what people are showing me! Its funny how I've always heard people say that when you start to grow and the Lord is preparing you for bountiful blessing, that's the time when you'll see the so-called friends dissipate. They never were friends...they're showing you that in the midst of your growth!

Thank God for lessons in all forms!

more to come...

Another week done!

Week two of school is in the record books!! Sweet pea had a fairly decent week! We came home early on Wednesday because she had had two long days, Monday and Tuesday. She was tired and took a nap when we got home! Not like her at all.

I'v been facing yet another conflict with things at school for her. I can not seem like for the life of me get an understanding from her speech teacher on what day(s) she will be working with her. I'v told her more than once that for the past few months she's been having therapy at the hospital on Monday afternoons. She first told me that she would work with her on Monday/Wednesday mornings at 10 a.m., then it was Tuesday/Thursday at 10 a.m., then Thursday she decides she wants to see her at the time the resource teacher has her scheduled and that was so distracting and very confusing. She tells me today at the end of the school day that she's 'probably' gonna work with her on Monday and Wednesday at 1 p.m., but wasn't sure. I was like okay, I'm not asking anymore and her therapy appointments have been scheduled for September, on Monday afternoons.

I am so tired of the 'educated educators' being so asinine!!

More to come...

One proud mommy tonight...

Today was a busy Monday for us! First, school, only for part of the day because of therapy. Therapy was AWESOME today...my sweet pea was able to use her Dynavox ( communications device ) to talk to two little boys ( Matthew and Luke ). I was so excited as well as her speech therapist ( Brittney ) when she activated the device to tell them her name, how old she is, what she likes to watch on tv and her fave store!!

Its a tedious process to get her used to using it, we're trying different formats to get her to using it more and more! We're, or should I say, SHE'S getting there...a work in progress!! By God's wonderful grace she's going to be talking my ears off with it soon!!

More to come...

One week done...

Well, one week of the new school year is over! My sweet pea had a pretty good week! She is so excited about the new Smart Boards at her school! They have her full attention when in use, and that's a very good thing! She has to change classes this year, outside of going to P.E. and speech, she was in her class all day! This is new to her and to me...just another sign that she's growing up!

She had last week off from therapy to get acclimated to being back in school, but we're back at it Monday!

More to come...

It's the weekend...

Which can only mean one thing....'back-to-school' Monday! Summer is over! No more of me and the princess lounging until midday sometimes, not more morning therapy appointments, no more laaaatte night tv watching, except for me watching some of "Big Brother After Dark".

Sweet pea's room has been cleaned and organized, closet is cleared of clothes that she has outgrown, they are packed and ready to be passed down to her little cousin or donated to Goodwill. I also managed to get our computer room/office cleaned and mostly de-cluttered...with the exception of the closet/ storage in there.

We are ready for Fall...the leaves changing colors and the COOL weather. I'm ready to treat my sweet pea to a weekend getaway in the cool weather too! We are also ready to see out soldier! Praying for his safety and recovery daily!

School updates are a definite!!

More to come...

Only a week left....

There is only one week left before our summer break is officially over! *sighs* It has been lots of fun in spite of the heat! We've managed to stay busy with therapy and other appointments. On Tuesday, the 27th, sweet pea had an appointment with her orthopedic specialist for routine follow up on her hip dislocation. Thank God, still no arthritis or scoliosis!! She will not have to see him until next summer unless her therapist thinks or sees a reason or need to see him sooner.

I'm kinda excited, somewhat though, to be getting back to school with her. She will be in 3rd grade! Where did the time go? She does NOT know that man that is considered her 'dad' she wouldn't know him if he walked in the door right this moment. He has not seen her in 6 years...sad excuse for a man and 'father'! That is not stopping us from enjoying life and our time together! She is a blessing and has changed mommy's life for the better!! Nothing and no one can make it better! Our BOND is unbreakable!!!

more to come...